Sjogren's Syndrome info

Support Groups - Connect with others

Here is a list of support groups by country. You can add a group by going to the "Contact us" page.

International Sjögren’s Network (ISN)

The International Sjögren’s Network (ISN) was established by 15 organizations meeting in France, at the Xth International Symposium on Sjögren’s in 2009. Since then the list has grown. 

Here is the list of those organizations that are now part of ISN.

ARGENTINA
ARASS Asociasiòn Rosarina De Autoayuda Para
Pacientes del Sìndrome De Sjogren
Phone: +54 (0)341152594121
Email Contact: sjogrenrosario@gmail.com
Website:  http://ssjogrenrosario.blogspot.com.ar

AUSTRALIA
The Australian Sjögren’s Syndrome Association, Inc. (TASSA)
Phone: +61 (0) 26 684 3704
Website: www.sjogrens.org.au

AUSTRIA
Selbsthilfe-Gruppe Sjoegren-Syndrom
Phone: +43 664 325 5797
Fax: +43 181 250 4188
Website: www.sjoegren-syndrom.at

BELGIUM
Association Belge de Patients Sjögren
(Sjögren.be)
Email: info@sjogren.be
Website:  www.facebook.com/sjogren.be

CANADA
Sjögren’s Society of Canada (SjSC)
Phone: +1 888 558 0950
Fax: +1 5197523830
Website: www.sjogrenscanada.org

CHINA
Association of Sjögren’s Patients of China (ASPC)
Phone: +86 18611707347    Fax: +86 1099324178
Email: sjogren.cn@hotmail.com
Website:  http://www.pusrc.org 

CROATIA
Zivot sa Sjogren Sindromom 
Phone: 0997954851
Email Contact: info@zivotsasjogrensindromom.hr
Website:  www.zivotsasjogrensindromom.hr 

FINLAND
Finnish Sjögren Syndrooma Association Finnish Sjögrenliitto ry 
Phone: +358 6 4232014
Website: http://www.sjogreninsyndrooma.fi/

FRANCE
Association Francaise du Gougerot-Sjögren et des Syndromes Secs (AFGS)
Email Contact: contact@afgs-syndromes-secs.org
Website: www.afgs-syndromes-secs.org

GERMANY
Selbsthilfe-Netzwerk Sjögren-Syndrom
Phone: +49 (0) 703 138 6202
Fax: +49 (0) 703 138 2595
Website: www.sjoegren-erkrankung.de

German Self-help network Sjögren-Syndrom

Buchtitel: Sjögren-Syndrom“
Ein Lehrbuch für Patientinnen und Patienten,
Ärzte und Co-Therapeuten“
2. überarbeitete Auflage 2009 von Dr. Christian Tomiak

INDIA
Sjögren’s India (SI)
Phone: +91 792 692 2254 and +91 942 913 3344
Website: www.sjogrensindia.org

INDONESIA                                                                                                              

Yayasan Sjogren's Syndrome Indonesia (YaSSI)                                                   

Email: ssi@yayasan-ssi.org

Website: www.yayasan-ssi.org
Instagram: @sjogrens_indonesia


ITALY
Associazione Nazionale Italiana Malati Sindrome di Sjögren – ANIMaSS.
Phone: +39 333 838 6993 or +39 045 958 0027
Fax: +39 045 958 0027
Websites: www.animass.org/sjogren

JAPAN
Japanese Sjögren’s Association for Patients (JSAP)
Division of Hematology and Rheumatology Department of Internal Medicine
Nihon University School of Medicine
Phone: +81 (0)3 3972 8111 Ext 2402 (Dr Masami Takei)
Fax: +81 (0)3 3972 2893
Email: numtakei@med.nihon-u.ac.jp (Dr. Takei)
Email: sjogren@med.nihon-u.ac.jp (Ms. Yamanoi)
Website: www.maeda-shoten.com/sjogren

THE NETHERLANDS
Nationale Vereniging Sjögrenpatienten (NVSP)
Phone: +31 (0)30 294 1383
Fax: +31 (0)30 294 8503
Website: www.nvsp.nl

MOROCCO 
Association Marocaine des Maladies Auto-immunes et
Systémiques  (AMMAIS)
Phone: +212 522 862 363
Website: www.ammais.ma

NEW ZEALAND
Sjögren’s Syndrome Association of New Zealand
Phone: +64 (0)9 428 1081
Website: www.sjogrensnewzealand.co.nz

NORWAY

Diagnosegruppe Sjøgrens Syndrom

Email: sjogrens@revmatiker.org

Website: www.revmatiker.no/diagnose/sjogrens-syndrom

POLAND

Association of People with Rheumatism and their
Friends (Stowarzyszenie Reumatykow i ich Sympatykow)
Email: reuma@idn.org.pl
Website: http://reuma.idn.org.pl 
Facebook: www.facebook.com/reuma.sriis
Twitter: https://twitter.com/Reuma_org 

PORTUGAL
Núcleo de Apoio ao Doente com Síndrome de Sjögren
da Liga Portuguesa contra as Doenças Reumáticas (LPCDR)
Website: http://lpcdr.org.pt/nucleos/nucleo-sindrome-de-sjoegren
Email: lpcdr@lpcdr.org.pt


QUEBEC
Association du Syndrome de Sjögren Inc
Phone: +1 514 934 3666
Fax: +1 514 934 1241
Website: www.sjogrens.ca

ROMANIA
Sindrom Sjogren Romania (SSRo) 
Email Contact: info@sjogren.ro  /  sjogrenromania@gmail.com 
Website:  www.sjogren.ro 

RUSSIA
National Public Organization of disable people
"Russian Rheumatic Association "Nadegda"

Website http://revmo-nadegda.ru/

SOUTH KOREA
Korea Sjögren’s Syndrome Support Group (KSSG)
Contact: Choi Kyung Seok
Phone: +82 31 225 2529
Website: www.sjogrens.or.kr

SPAIN
Asociación Española Síndrome de Sjögren (AESS)
Phone: +34 91 535 8653
Fax: +34 91 535 8654
Website: www.aesjogren.org

SWEDEN
Riksföreningen Sjögren’s Syndrom
Phone: +46 4625 5925
Fax: +46 4040 1535
Website: www.sjogrensyndrom.se

SWITZERLAND (FRENCH)
Association Romande du syndrome de Sjögren (ARSYS)
Phone: +41 21 921 2931
Website: www.sjogren.ch

SWITZERLAND (GERMAN FORUM)

Website: http://www.sjoegren-forum.ch/

UNITED KINGDOM
British Sjögren’s Syndrome Association (BSSA)
Phone: +44 (0) 121 455 6532
Website: www.bssa.uk.net

UNITED STATES
Sjögren’s Syndrome Foundation
Phone: +1 301 530 4420
Fax: +1 301 530 4415
Website: www.sjogrens.org


Organizations Supporting this Disease

    Organizations Providing General Support

       

      Where you can join in the conversation and add your story 

       

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